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What is “adding other information”?

Government departments and agencies hold information about people which they use for routine administrative purposes. From time to time we add information from these routine administrative records to the information you have given us as part of the study. In the age 50 Survey in 2008 we asked you for your permission to add information […]

What information about me do you want to add?

The information we would like to add is kept in your health and economic records. National Health Service (NHS) records The NHS maintains information on all patients accessing health services through routine medical and other health-related records. These records are held within statistical health databases which record information about: – admissions or attendances at hospital […]

Why is adding this information important?

Health records We collect information about your health in the interview, but this information is fairly limited in scope. The information recorded in your medical records is objective and based on confirmed diagnoses by medical professionals. However, medical records may not be entirely complete as they will not include details about problems, which have not […]

Why are you asking for my partner’s consent?

The circumstances of the people you live with have a big effect on you. If, for example, your partner were to become seriously ill, or were to experience a prolonged period of unemployment, this could clearly have a significant impact on your life. We are only able to collect a very limited amount of information […]

Can you give me some assurances?

– The information cannot and will not be used to identify the health / financial circumstances of any named individual. – The information collected from your records will be held securely with no direct personal identifiers (e.g. name, address) – like all other data collected by NCDS. – No directly identifiable personal information (e.g. names […]

How do you add this information?

We provide your personal details (name, address, sex, date of birth, NHS or National Insurance Number (NI) – if held) to the NHS or NHS agencies, DWP and HMRC (or to a trusted third party employed by the government department or agency). No other information collected in the survey or held by CLS is passed […]

How do you keep my information safe?

To keep your information safe, it is encrypted and sent via secure transfer systems. All information collected by the National Child Development Study, including information from administrative records, is treated in the strictest confidence in accordance with the Data Protection Act and the General Data Protection Regulation (GDPR).

Who will use the information?

The information will be made available to researchers under restricted access arrangements via the UK Data Service (UKDS) or similar organisation. Researchers based within the Centre for Longitudinal Studies may be given access to the linked data via the highly secure UCL Data Safe Haven (DSH). Access to the data via the UKDS or the […]

Can I be identified?

No. At no point will your name or address be connected to your linked information. We have strict controls about the way that information is added together to ensure that no one can work out who you are. Information from different administrative records will not be included in the same data file if it is […]