Privacy

Privacy information for participants in NCDS

These privacy pages are for anyone whose data that we hold for the research purposes of the study. They contain information on how to contact us. We use your information for the legitimate purposes of the study including to:

• Keep in touch with you
• Carry out surveys
• Link data to your study record
• Collect and analyse biological samples
• Share our research data with the research community
• Share our research findings
• Record your participation in the study
• Understand how our website and social media are used

As the study follows study members’ whole life course, we plan to keep study data for at least as long as the study exists. We take confidentiality, security of study data and the individual rights of study members seriously. We have arrangements in place to protect study members’ personal information. Find out more about the steps that we take to maintain privacy and how we keep study information secure.